Ah, tissue expanders. They mean well, but they sure are a pain in the butt, er, chest.
Here’s the story: tissue expanders, or TEs, are these round bag-like things that are placed in a woman’s chest to make room for eventual breast reconstruction. They can be slowly filled with saline until the desired breast size is reached. In my case, no fluid was added at the time of my mastectomy surgery because there was just no room. The surgeon had to take a lot of skin, so there was barely enough space for the TEs. That was okay though, because the original plan was that I would have surgery, recover, start filling the expanders, and go through reconstruction. Unfortunately, I had high grade, multifocal tumors and a positive margin, so chemotherapy and radiation had to be called in.
I got three fills before I had to stop for radiation. I was going from concave-ish to some sort of shape, so he only used about 50ccs each time. On my third fill, I touched my ballooning breast area and asked Dr. K if there was any chance that they would pop like a water balloon. He quickly said no, but then offered this gem: “I guess they would pop if you stuck a fork in your boob. So don’t do that.” Naturally, I am heeding this advice. (And seriously, if I start stabbing myself with flatware, then I’ve got bigger problems than nicely shaped breasts.)
The deal with radiation is that your skin goes through some changes that aren’t cool for people who are mid-recon like me. So once you have radiation, you have to wait four to six months (and maybe longer) for the skin to return to some sort of natural state. If the skin doesn’t play nice then you have to get surgery that involves a flap of skin from your back. Yuck.
The terrible scarring that took my breath away after surgery is fading. I don’t even notice it anymore. The thing that consumes me right now is odd shape and crazy asymmetry I’ve got going on. My left side, the CANCER side, is still healing from radiation. The skin got really tight and hard, and it looks and feels like I should be really careful when in the vicinity of forks. The right side, though, is really weird. It is hanging about two inches lower than my left and the skin has stretched a little. The tissue expander underneath is so smooshy that I actually have corners sticking out of my skin. It’s completely bizarre. Even though I have some shape due to the fills and don’t really need to wear a bra (no coldness meters), I still wear a bra so I have some consistency shape wise!
Here’s a self portrait I made to illustrate the current state of affairs on my chest:
In a few months, I’ll go visit Dr. K and see how he thinks everything is going. In the meantime, I’ll continue to rub vitamin E cream into the rock protruding out of my person. I’ll also continue to update my blog in an effort to get these feelings off my chest. (Hah! CHEST! See what I did there?)

I have had my expanders for 3 weeks tomorrow. I hate them. They are filled to the full 550 ccs. Needless to say, I feel like I have two landscaping rocks on my chest. My plastic surgeon wanted me filled full before radiation, which I go tomorrow to see when I get to. Do this. I am having a tough time regaining my range of motion, being 36, this is pretty important to me. If you have pearls of wisdom or anything inspirational email me at julieinspiredbyyou@gmail.com. Thanks a bunch! Hang in there!
Julie, in essence, I know the tissue expanders are a good idea, but they are really uncomfortable! I’ve had mine for nine months. For radiation, make sure you keep stretching…once you start to lose your range of motion it’s tough to get it back.
Thanks for the advice. I am working on it! Love your honesty in your blog!
This is the best piece of writing I’ve seen in ages but I’m having a hard time finding the right words to say it, because cancer. Everything seems trivial compared to that. Still, fantastic post!
I like that you’re able to maintain your sense of humor while unfunny things are happening to you. I admire that.
I wish you the best as you’re recovering. And congrats on being Freshly Pressed.
As a 2005 breast cancer survivor, I would NOT go through reconstruction. Just another form of woman torture…have a friend who had reconstruction, a recurrence, and went through the torture again. What for ladies!
PS I found massage very helpful in breaking up scar tissue. When you are healed, try it, as it will soften the tissues. Sure it hurts at first, yet DOES help. Stretch too. Let us face facts ladies, these invasive treatments/surgeries change our bodies forever. We must be strong to survive.
Thanks. I’ve been working on the massage, but it does hurt. No pain, no gain!
Be strong, babe.
dont lose your sense of humor. I think it helps you.
Sending you energy and a hug!
Recieved!
Good! Being a cancer survivor, I know how important sharing can be. If you didn’t see it, here is a poem I posted on my blog.
She dreaded that their first lovemaking would be marred,
For on that day he would see she was truly scarred.
Came the moment she trembled like a frightened doe,
As her clothes were cast aside for now he would know.
He looked, then spoke to eyes that knew what he had seen,
I love your face, feet, and everything in between.
Still facing her, they gently kissed and then he kneeled,
Touching her heart so that by his words she was healed.
these kinds of things give me the creeps O.o
but nice post =)
Wow love this post! Stay strong!!
MontrealDSL
Business Blog
I had to read your post just based on the title-AWESOME! And thank you for sharing with the world what I’m sure is a very difficult time for you. I would imagine your comments and humor will help a lot of women in the same position or those who are about to undergo a mastectomy. Sending thoughts and happy vibes your way!
Congratulations on your attitude. Your post was really well-done. Fortunately, I cannot relate to your situation but I can admire your sense of humor and feisty style as you push thru it all. Keep fighting!
I know that this is as much about self-image as anything else, but just to let you know, a lot of us guys CAN deal with the absence of breast tissue. Try not to put yourself through anymore pain than absolutely necessary. You are one tough woman. We are all rooting for you. — YUR
Thank you for sharing your experience with us, and for punctuating it with clever humor. Best FP I’ve read in a while. Sending you best wishes for recovery.
That’s rough. It takes guts to get that out into the blogosphere. Hope you continue to recover. This was a great post and educated me a lot on what might happen to a woman with breast cancer. Keep up the good work and stay strong.
And congrats on the FP.
stay strong, it’s awesome that you have a great attitude. i’m a survivor also. mine was a radical mastectomy with 3 lymph nodes removed. that was 3 yrs. ago,but i have no hope of reconstruction because of the huge area removed.
You are so strong to write that, and in a very clever style too! Best wishes for the rest of your treatment and do be careful of forks.
You are hilarious and my hero!!
Stay strong friend!!
We know nobody goes from diagnosed to survivor in the snap of a finger. Your blogging provides insight and hope. Sending best wishes and prayers for your recovery.
Hello there, I have had my expanders in for about three months now and yes, rocks are how I describe them most of the time, that or I call them my Arnold pecs. I massage said rocks at least twice a day and it really helps, even my “corners” are starting to soften. I recently went back to doing some yoga, yikes! that was a bit tough but if you need to stretch you need to do it slowly and strongly. I just found your blog and wish you luck and strength in your recovery.
I also went through a mastectomy and reconstruction. In the end, it’s totally worth it. Hang in there and keep the good humor!
Wow. I love your sense of humor through all of this craziness! And, I love that you are sharing your journey with the world! I imagine that it will not only be therapeutic for yourself but also helpful and comforting to those experiencing similar frustrations. My mother is a 5 year breast cancer survivor. We actually took photos of her boobs at one point just because it was so unbelieveable how wierd and damaged they looked (probably not the best choice since my poor daughter stumbled on them in our hard drive – and NO ONE wants to have the image of grandma’s boobs in their brain) Anyway, hang in there and watch out for falling forks!
– Utah Wife
P.S. Congrats on being Freshly Pressed, too!
I have great admiration for you and the commenters. Grace under pressure – that’s class! As a yoga teacher with a number of cancer patients as students, I encourage you do some yoga. It can be a respite for you. And it will give you some nice movement to work with, along with other benefits. Talk to the teacher first and tell her what you’re dealing with. Then do something good for yourself. Deep bow to you and the other women here. Thank you.
Good advice. I really miss yoga.
Stay Strong!! And thanks for sharing!!
Your post put a smile on my face. Great attitude – being able to maintain humour!
Best wishes for your recovery
~ Shaza ~
Radiation – no fun! I still have pain from the constant zapping four months later! Feels like constant a big bruise… I am lucky that I didn’t have to have reconstruction. You are very brave – enjoyed your blog!
I have just completed my training as a Radiotherapist, and I have such admiration for my patients that I see every day. I wish you all the best, and am sending much love to you over the tinterweb x
I referred to mine as “sub-dermal tupperware”. Schniikeess what an invention! Today is my 4 years “in the pink.” Glad to hear you’re on your way forward
Brilliant drawing. You really should consider a sketching career in addition to your blogging.
Great post. Your positive, fun attitude is inspiring.
My bestfriend’s sister had a double mastectomy a month ago and was going to have spacers put in, too, but has had to hold off because they found the cancer had spread to her lymph nodes so she is under going an aggressive chemo to be followed by radiation. She had her second chemo treatment a few days ago and developed an infection in her port so she’s in the hospital at the moment.
She is the first person I’ve ever known with breast cancer. She is handling it like a champ. I am in awe of her.
Good vibes are going your way, too.
Very interesting read, I’m sorry you are having to go through this! Based on your awesome sense of humor and attitude though, I’m sure you are going to come out a stronger and better woman in the end. Thanks for sharing with us!
Congratulations on being Freshly Pressed. I’m sorry your post is because you have had and are healing from, cancer. But I appreciate your post and your honesty. I love your drawing. And I hope for health and happiness for you.
Love your sense of humor!! I would imagine that you set smiles on MANY FACES while you are dealing with healing…so I just wanted to say thanks for being such a great example to the rest of us of what it means to bring others along with you on your journey.
I can’t begin to imagine what this has been like for you. Praying you can heal wholly and be cancer free from here on out.
Cancer doesn’t sound good. Good luck. Wish you a long happily ever after life
I just stumbled across your blog and I too have lopsided boobs due to radiation. But I had reconstruction using my stomach fat–thank goodness I had plenty of that. I knew that one day avoiding situps and enjoying french fries was going to pay off. Thanks for reminding me that I’m not the only one going through this craziness. Happy healing!
French fries…good for the chest!
How was your surgery and recovery. I too have tissue expanders and they hurt. I went for diep flap consult but now am very afraid of it. I do not want anore pain.
I haven’t had surgery yet. My tissue expanders have been in place since November 2012. It’s now January 2013. Hopefully my skin has recovered from radiation, but if not, I’ll have to go for the flap. I can tell you though that you get used to the pain. I took pain meds for about six months and then moved to Ibuprofen. But now, I rarely feel pain, just a few twinges every day. Occasionally it will be strong enough to take my breath away, but it passes.
My tissue ecpanders are horrible. My srgry was November 13. I am finally feeling a little better. My left arm is in s lot of pain. I have lymphedema had 2 nodes removed. Radiation starts next week. I too am terribly afraid of the diep glsp durgery. A doctor friend told me ig is a 22 hour surgery xnd the recovery is horrific. I too do not want this srgry because of the horrible pain after my bi-lateral mastectomy. I’m still having a lot of numbness and tissue nerve pain. This just stinks with what we have to go through. I have six weeks of radiation and hope my skin is alright. The fall of 2013 will be final surgery. Good luck to you. Please let me know how you are doing. I am on motrin now as the pain meds do not agree with me. It helps but not all the pain goes away.
After my mastectomy surgery, I thought the pain would never go away. Other women told me it would fade, but I was sure that I was in for a lifetime of pure torture. It did fade for me though, and it will for you too. As for the radiation, do exactly what the doc tells you to keep your skin protected. And keep massaging for several months after. I know women who were able to have regular reconstruction after radiation, and they credit it all to consistent massage and good ointment. Peace to you!
interesting
im so sorry you have cancer
I didn’t have breast cancer, but lung cancer. Stage IV. Because I had to have radiation to my chest, specifically the right side was where my CANCER was, the right breast is like two sizes smaller than the left. My right lung is missing a lobe.
I’m sorry you’ve had cancer. It’s not ever a fair fight, is it.
thank you
What a wonderful post. You somehow have me laughing out loud at cancer?? I hope you stay strong and positive. I do daily meditations around healing, I’ll add your name to my list:)
If I didn’t laugh at all this I’d be crying. I accept healing…thanks
Cancerpurse, hmmm. Your post got me thinking – I write often about cancer (my aunt recently passed away, this is part of my grieving process). I’ll make my next post about the purse I bought her for her treatments. Thanks for sharing, best wishes for strength thru your journey.
‘the h…..
Great humour for a challening time. Good for you. Congrats on the FP too.
Stay well,
Cheers,
iRuniBreathe
Your title captured my attention, and your honesty captured my heart. Your ability to keep humor is both amazing and admirable, and it says a lot about your character. Not to make less of what you’ve been through already, I believe in you, and your ability to push forward. And reconstruction… why not? It’s your body and your choice! Best wishes to you!! And way to go on being Freshly Pressed!
Glad to see you’ve kept your sense of humor… All the best in your continued recovery, and congrats on being Freshly Pressed!
I have had a number of health problems and the most help I have gotten is from my acupucturist who also does great body work. Might be worth investigating. He DOES listen and explain things and his advice makes sense. I rarely find these things to be true of MDs.
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I found your humor very interesting.
I had a wonderful time reading this. pray
stay strong!!! love your attitude, congrats on being fresh pressed!!!
Cancer sucks, attitude beats it!
When my Mom was coming home from her first day of radiation, my younger brothers and I played the starwars imperial march and they had their lightsabers out… get it? starwars & space radiation? haha. Our attempt to humor it as kids (and take some of her stress off)
you’ll be out of this soon enough & on with your life, keep being strong & humorous!
I only wish you fast recovery and most of all fast healing. Thanks for sharing your wonderful blog.
great………….. stevens johnson syndrome
hahahaha your drawing is wonderful.
on a more serious note, wishing you well and a very speedy recovery. you’re an inspiration! congrats on being freshly pressed!! x
I literally found this by googling “tissue expanders poking out”, because that’s how I feel. Your illustration made me laugh for about five minutes. Thanks for that.